On this page you can find out about:
Benefits & Employment
Making a complaint
Addison's Disease Self Help Group The ADSHG is the UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency). AMEND AMEND, the Association for Multiple Endocrine Neoplasia Disorders, is a UK registered charity supporting patients with Multiple Endocrine Neoplasia and associated growths, their families and friends. Tel: 01892 516076
Association Vivre Sans ThyroideForum for French patients living without a thyroid
British Thyroid Foundation A patient led association for those with thyroid disorders. Telephone: 01423 709707 / 709448 Email: email@example.com Telphone support contacts
Butterfly Thyroid Cancer Trust Butterfly Thyroid Cancer Trust is dedicated solely to the support of people affected by Thyroid Cancer in the UK. Helpline 01207 545469.
CancerHelp UK The patient information website of Cancer Research UK.CLIMB - Children Living With Metabolic Diseases UK umbrella group providing information and support for parents, carers, professionals and patient support groups.Contact A Family Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. Freephone Helpline on 0808 808 3555
Crohn's and Colitis UKCalcium absorption problems? Crohn's and Colitis UK aims to improve life for everyone affected by Inflammatory Bowel Disease (IBD), the most common forms being Crohn's Disease and Ulcerative Colitis.
DiGeorges syndrome, 22q11 Yahoo group - 22q11 and You
The Diseases Database
European Thyroid Association Aims to promote and improve knowledge of the thyroid field.
Genetic Alliance UKA national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders. HPTH UK is a member.
Managing Long Term ConditionsA forum for all those involved with people livig with long term conditions
Max Appeal - for children with DiGeorge syndrome,VCFS and 22q11.2 deletion Charity website run by parents for parents
The National Osteoporosis Society The National Osteoporosis Society is the only national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease for women and men. Helpline 0845 450 0230 or 01761 472721
National Parathyroid Education FoundationThe Foundation provides educational services to doctors and patients via publications in medical journals, lay media, websites, blogs, and video while providing social networking tools which allow patients to connect and self-educate for a healthier life.
NET Patient FoundationInformation and advice to those affected by neuroendocrine cancer
Patient UKA directory of UK health, disease, illness and related medical websites that provide patient information. HPTH UK have co - authored the pages on Hypoprathyroidism and Hyperparathyroidism.
Rare Disease UKThe national alliance for people with rare disease and all who support them.
Rarer Cancers ForumInformation website and forum for those with rare and less common cancers
Sense About ScienceA charity that works with scientists and members of the public to change public debates and to equip people to make sense of science and evidence.
Thyroid Cancer AllianceAn international coalition of national self-help organizations of thyroid cancer patients. The organizations have joined together in a number of projects to bring the patient voice to the Thyroid Cancer medical community.
Thyroid Cancer Support UKHPTH UK's sister group - an online yahoo forum for all those affected by thyroid cancer
Thyroid Federation International The Federation works for the benefit of those affected by thyroid disorders throughout the world
UK Self Help Group Directory
You and Your Hormones A new web-based project by the Society for Endocrinology that aims to give patients and the general public access to reliable online information on endocrine science.
NHS DirectSymptom checker and advice Tel 0845 4647
NHS ChoicesHealth information for the public: local services, health A-Z, healthy living advice, advice for carers, health news. You can give feedback.
Your rights to choice
CHOOSE AND BOOKFind a GP, hospital, dentist & other health services
The Yellow Card SchemePlease report any side effects from medicines here to the MHRA
MHRA An executive agency of the Department of Health that enhances and safeguards the health of the public by ensuring that medicines and medical devices work and are acceptably safe.
NICE An independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health.
The Department for Work and Pensions (DWP)
The Benefits Enquiry Line Tel 0800 882200
Disability Living AllowanceSome people with severe HPTH are eligible for DLA- see check list here
Disability and EmploymentLatest regulations on your rights at work - Equality Act 2010
Citizens Advice Bureau
Benefits advice guideThe benefits online advice page
Employment Advice GuideThe employment online advice guide
NHS CHOICESHow to complain about NHS treatment or care
PALSPatient Advice & Liason Service
The Patient's Association A national charity providing patients with an opportunity to raise concerns,get advice and share experiences of healthcare. Helpline 0845 6084455 or 0208 423 8999
Write to your MPYou can find out about your MP here and contact them by letter or email. Or, your local paper will give 'surgery' times when you can book an appointment with your MP.
Health OmbudsmanThe role of the Ombudsman is to consider complaints that government departments, a range of other public bodies in the UK, and the NHS in England, have not acted properly or fairly or have provided a poor service.
ProBonoUK"Pro bono" is the term for free legal help for someone who cannot afford to pay for legal assistance and is not entitled to legal aid.
Legal Advice finderFind legal advisers or solicitors near you
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