:: Hypoparathyroidism UK ::

Rare Disease Day

Rare diseases are collectively not rare! They affect over 3.5 million people in the UK at some point in their lives and improvements to services are needed to ensure that people receive equitable, high quality care.

HPTH UK will be attending the second annual Rare Disease Day to be celebrated on 25 February 2009 in countries throughout Europe. In the UK, Rare Disease UK in collaboration with the Genetic Interest Group is hosting three events in England, Scotland and Wales to raise awareness of rare disorders and the impact that they have on patients’ lives among the media, decisions makers, health professionals and the general public.

Rare Disease UK is an alliance of key stakeholders brought together to develop a national plan for Rare Diseases in the UK. The Genetic Interest Group (GIG) is the UK national alliance for all people affected by genetic disorders. They are working together to promote Rare Disease Day in the UK. To find out more, please visit http://www.rarediseaseday.org