To mark World Hypoparathyroidism Day 2011 we published a collection of patients' stories called the 'Living with Hypoparathyroidism' project . This was launched to raise awareness and understanding about what it is really like to live with ithis challenging and rare condition and to build a useful resource for doctors, researchers, patients and families. The focus in 2011 was on the post surgical experience while in 2012 the spotlight was on all the other forms of hypoparathyroidism - idiopathic,Lasautoimmune, familial and more.
To read the stories please click here
We are adding to this resource all the time so if you would like to help raise awareness about your particular condition you can find out how to add your story here:
If you would like to tell us about your experience and what it has meant to your life there are 2 ways to add your story to the collection:
Make a video using a phone, camera or camcorder, and upload it to our HPTHUK1 YouTube channel here
Here are a few questions to help you get started:
Thank you for helping us to raise awareness about hypoparathyroidism
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