From Rare Disease UK:

Newsnight report highlights concerns about GP NHS Commissioning for patients with rare diseases

Newsnight featured a report yesterday, 24th August, outlining concerns about the impact of the government’s plans to introduce GP Commissioning on patients with rare diseases.

The story was as a result of research by the Muscular Dystrophy Campaign highlighting that GPs have poor levels of understanding of muscular dystrophy resulting in cases of misdiagnosis and inappropriate referrals, care and advice.

The report also featured a case study of a mother whose 12-year-old son with duchenne muscular dystrophy was misdiagnosed twice, and the views of spokespeople from the British Medical Association’s GP Committee. Unfortunately the Government did not send a Minister to comment on the issue.

To watch the programme follow the link to BBC’s iPlayer.

To read the Newsnight article about the report click on the link to Newsnight’s website.

Rare Disease UK will be responding to the Government’s White Paper, Equity and Excellence: Liberating the NHS outlining our concerns and a draft response will be circulated in due course.

Rare Disease UK