HPTH UK at Manchester conference

 

In March, Mandy Mainland (project manager and newsletter editor) and I manned a stand at the Society for Endocrinology’s annual British Endocrine Societies (BES) Conference in Manchester.

Judith and Mandy set up the HPTH UK stand                                                                          

The Society for Endocrinology is the representative professional body for endocrinologists in the UK and its membership includes clinicians, researchers and nurses, so we were able to introduce the organisation and to ‘launch’ the new hypoparathyroidism patient information leaflet which was developed in conjunction with the SfE’s Bone and Mineral Special Interest Group

It was a great opportunity to meet members of the professional endocrinology community personally and hear at firsthand about their experiences in managing HPTH. It was also a great chance for us to meet representatives from many other patient support groups (PSGs) who have many years experience and were all too happy to share.

Jo Grey and volunteer from Amend

 

 

 

 

 

Janis Hickey and team from the  British Thyroid Foundation.

 

 

 

 

View of the hall from our stand where Mandy prepares for the next rush.

 

 

 

 

 

 

 

During the conference, the SfE hosted a meeting of Patient Support Group representatives where we exchanged ideas about some of the common issues facing us. Some of us were also able to attend a talk by Ellen Raphael of Sense About Science who introduced the organisation’s work, explaining how they help people distinguish between sense and nonsense, the importance of peer review, and some tips for dealing with the media.

Very many thanks to the SfE for inviting us to participate at the BES and we hope that, space allowing, we will be asked back to future conferences.

Judith Taylor
Public Affairs Officer

 

NOTE FROM DIRECTOR

Since this conference , we are delighted to have recieved a grant from the  Society for Endocrinology to cover the printing and distribution costs of our Patient Information Leaflets. Many thanks SfE! And many thanks to Judith and Mandy for all their hard work too!