NOW CLOSED

UK Patients with ANY form of Hypoparathyroidism are invited to participate in this new study on Hypoparathyroidism currently taking place in the USA. This will be a very useful study for us and we do hope that as many of you as possible will take part.  

'An Endocrine Oncology research group from Harvard Medical School and Harvard School of Public Health is conducting a study to 'Compare the perceptions of Hypoparathyroidism held by surgeons and preoperative patients with those held by people who actually live with Hypoparathyroidism.  

The survey asks for your views about your health as an individual with permanent hypoparathyroidism. Your responses will indicate how you feel and how well you are able to do your usual activities.   There are 25 questions that should take around 10 minutes to complete, including a series of demographic questions at the end.

The information you provide is completely private and completely anonymous. There are no questions that involve identification.   Some of the questions are not phrased perfectly, some are specifically for American patients and some are for post surgical patients only but please help by marking the one box that best describes your answer, where possible.  

To take the survey, please click HERE.  

Thank you for your participation.  

Dan Ruan, M.D.

Harvard Medical School'  

Thanks to Dr. Ruan for this invitation - and also to Matt LeClair, research assistant at the Brigham & Women's Hospital in Boston and James Sanders of the Hypoparathyroidism Association, USA.