:: Hypoparathyroidism UK ::

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Welcome to HPTH UK

The national organisation for people with all forms of Hypoparathyroidism and other rare parathyroid disorders.

We are delighted to be launching our new website to mark Hypoparathyroidism World Awareness Day on 5th January 2010.

Thank you for joining us.

January 5th was chosen as HPTH World Awareness Day because it was on that day, in 1994, that a 6 year old girl in Iceland, Halla Ruth, became the first person in the world to be treated for hypoparathyroidism with replacement parathyroid hormone (PTH) - our missing hormone.

Today, 16 years later, the first clinical trial on the use of PTH 1-84 for the treatment of HPTH, is finally taking place in the UK as part of a global study (see right). This is largely due to the efforts of Gudrun Ruth Vidarsdottir, the mother of Halla Ruth. If the trial is successful, we hope that PTH 1-84 will soon be licensed for use in the treatment of HPTH.

We invite you to take time today to help raise awareness about this rare condition by making a chain of Hypoparathyroidism links around the world. Just pass on this website link to 5 people and ask them to do the same. Thank you!

Our new logo and poster have been designed for us by Bristol art student Sophie Burrows.

How can we help you?

Are you or your family affected by HPTH? Are you a doctor, scientist or student? Whatever your interest in Hypoparathyroidism, we will do our best to help. Please look around this site, which is being added to all the time. If you can't find what you need here, if you have any questions about Hypoparathyroidism or HPTH UK , or any suggestions or comments about the site please email us, write or call the helpline. We are always happy to listen and to help where we can.

HPTH UK is a charitable organisation recognised by the Society for Endocrinology and the British Thyroid Association and is a member of the Rare Disease UK Alliance and the Genetic Interest Group.

Members Forum

Latest news… Are you now eligible to join the first UK clinical study on PTH 1-84?

SEE NEW CRITERIA CHANGES!

Newsletter no.3 out now....Non-members may order a postal version for £3.50 incl P&P.Please contact the Editor

Fundraising… 10/10/10......Runners - it's time to let us know if you would like to run for us in the Royal Parks Half Marathon on 10/10/10

HPTH UK shop...
coming soon

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