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We are the only UK charity providing advice, information and support to people affected by Hypoparathyroidism and other rare parathyroid conditions Living with Hypoparathyroidism (patients' stories)Visit our Members' Forum Download a patient information leaflet
On 12th May, brave Scottish mother Lorraine Mathers will be diving out of a plane from 10,000 feet to raise funds for HPTH UK. Spurring her on will be the thought of her one year old son Reece who has hypoparathyroidism. Joining Lorraine will be Reece's aunts Michelle Roberts and Claire Clarke and his uncle, Thomas Muir, a real family affair! If you are in the area of Strathallan Airfield (one hour from Edinburgh or Glasgow) do go along to give them your support. They hope to raise £400 each for HPTH UK through this and two family fun nights.
Please sponsor Lorraine and her family on our Bmcharity page here
HPTH UK exhibited at the week long British Endocrine Society's annual endocrine meeting in Harrogate. Thank you to Mandy (below), Judith and Sharon who worked so hard to raise awareness about hypoparathyroidism and HPTH UK.
This is great news for us. It means that we will be accepted on many more fundraising sites and you can tick the box to give us Gift Aid on any doantions you kindly make. Oh - and the Pay Pal button is back >>>>
Fantastic news! Today the Department of Health launched the draft UK plan for Rare Diseases. Thank you to Rare Disease UK for all their work leading up to this and to all HPTH UK members who wrote to their MP's. Read more here.
On the day, HPTH UK exhibited at the Rare Disease event held at the University of London, Royal Holloway college.
Our grateful thanks to the Society for Endocrinology who have awarded us a Patient Support Grant of just over £3,000. As we don't recieve any other funding, and rely on donations and fundraising to keep going, we are very happy indeed to recieve such a generous award - thank you SfE, what a lovely start to the New Year!
The 'Living with Hypoparathyroidism' project was launched on June 1st 2011 to mark World Hypoparathyroidism Awareness Day. Last year we focused on surgery and this year we are focusing on all other forms of HPTH. The project aims to build a collection of stories from patients to raise awareness about living with post surgical hypoporathyroidism. (We will be focusing on the genetic forms of HPTH will be next year). Find out how to add your story here. Read patient stories or watch them on YouTube
Are you or your family affected by HPTH? Are you a doctor, scientist or student? Whatever your interest in Hypoparathyroidism, we will do our best to help.
We work hard to improve the quality of life for those living with HPTH by
providing support and a place of contact for our members via our forum and telelphone helpline, newsletters and (coming soon) regional groups
providing information and education via our website and leaflets
raising awareness about HPTH to the public, patients & health professionals
campaigning for better treatment
Please look around this site which is being added to all the time. If you still have any questions about parathyroid matters or about HPTH UK that haven't been answered here or if you have any suggestions or comments about the site please get in touch. We are always happy to help where we can and go that extra mile but we are small in number so please be patient when waiting for a reply.
HPTH UK is a voluntary organisation recognised by the Society for Endocrinology and the British Thyroid Association and is a member of Genetic Alliance UK and Rare Disease UK .
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